{"id":5794,"date":"2022-08-17T08:15:32","date_gmt":"2024-02-10T13:16:50","guid":{"rendered":"https:\/\/002.chilluh.nl\/nih-rare-disease-day-2024\/"},"modified":"2022-08-17T08:15:32","modified_gmt":"2024-02-10T13:16:50","slug":"nih-rare-disease-day-2024","status":"publish","type":"post","link":"https:\/\/werelivingwell.com\/hnndci-nih-rare-disease-day-2024-tjyvpt-photos\/","title":{"rendered":"Nih Rare Disease Day 2024"},"content":{"rendered":"<div class=\"cd5c096581fd5fc23b44a4969c1e3c2e\" data-index=\"1\" style=\"float: none; margin:10px 0 10px 0; text-align:center;\">\n<div style='text-align: center;'>\r\n<script type=\"text\/javascript\">\r\n\tatOptions = {\r\n\t\t'key' : '0a1f35073c594f712b44ac459670782f',\r\n\t\t'format' : 'iframe',\r\n\t\t'height' : 250,\r\n\t\t'width' : 300,\r\n\t\t'params' : {}\r\n\t};\r\n\tdocument.write('<scr' + 'ipt type=\"text\/javascript\" src=\"\/\/www.profitablecreativeformat.com\/0a1f35073c594f712b44ac459670782f\/invoke.js\"><\/scr' + 'ipt>');\r\n<\/script>\r\n<\/div>\r\n\n<\/div>\n<p>\t\t\t\t<![CDATA[\n\n<p><b>Nih Rare Disease Day 2024<\/b> &#8211; On Rare Disease Day, we spoke to chief executive of the Genetic Alliance UK, Jayne Spink, about using the patient voice to tear down barriers to building evidence for, and securing access to  . We provided a link below. Rare Disease Day is usually on February 28th, but this year is on the 29th since it\u2019s Leap Year, the rarest day on the calendar. By the way, Eli\u2019s birthday is  .<\/p>\n\n\n\n\n<h2>Nih Rare Disease Day 2024<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Rare Disease Day at NIH 2024   National Organization for Rare \"><img decoding=\"async\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2023\/12\/NCATS_RDD_LogosStacked_2024_Blue.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/rarediseases.org\">rarediseases.org<\/a>\n\n\n<h2>Rare Disease Day at NIH 2024 | NIH Intramural Research Program<\/h2>\n\n\n\n\n<p align=\"center\"><a title=\"Rare Disease Day at NIH 2024 | NIH Intramural Research Program\"><img decoding=\"async\" src=\"https:\/\/irp.nih.gov\/sites\/default\/files\/media\/image\/2023-12\/even-Rare_Disease_Day_2024-logo.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/irp.nih.gov\" rel=\"nofollow\">irp.nih.gov<\/a>\n\n\n<h2>Rare Disease Day at NIH 2024 | National Center for Advancing <\/h2>\n\n\n\n\n<p align=\"center\"><a title=\"Rare Disease Day at NIH 2024 | National Center for Advancing \"><img decoding=\"async\" src=\"https:\/\/ncats.nih.gov\/sites\/default\/files\/styles\/large\/public\/2024-02\/RDDDigitalEvent-WebPromo.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/ncats.nih.gov\" rel=\"nofollow\">ncats.nih.gov<\/a>\n\n\n<h2>Rare Disease Day at NIH 2024<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Rare Disease Day at NIH 2024\"><img decoding=\"async\" src=\"https:\/\/media.socio.events\/small\/d\/1699371799-9288-rdd_registratio.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/registration.socio.events\" rel=\"nofollow\">registration.socio.events<\/a>\n\n\n<h2>NCATS on X: &#8220;Get ready for #RareDiseaseDay at @NIH 2024 <\/h2>\n\n\n\n\n<p align=\"center\"> <a><img decoding=\"async\" src=\"https:\/\/pbs.twimg.com\/media\/GArvJbMW0AAYvAx.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/twitter.com\" rel=\"nofollow\">twitter.com<\/a>\n\n\n<h2>Rare Disease Day Scheduled for Feb. 29 | NIH Record<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Rare Disease Day Scheduled for Feb. 29 | NIH Record\"><img decoding=\"async\" src=\"https:\/\/nihrecord.nih.gov\/sites\/recordNIH\/files\/styles\/full_width\/public\/2024\/February-2\/20240202-RDD-2024.jpg?itok=Irm0FZW3&amp;timestamp=1706799096\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/nihrecord.nih.gov\" rel=\"nofollow\">nihrecord.nih.gov<\/a>\n\n\n<h2>NCATS on X: &#8220;Get ready for #RareDiseaseDay at @NIH 2024 <\/h2>\n\n\n\n\n<p align=\"center\"> <a><img decoding=\"async\" src=\"https:\/\/pbs.twimg.com\/media\/GArvJbMW0AAYvAx.jpg:large\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/twitter.com\" rel=\"nofollow\">twitter.com<\/a>\n\n\n<h2>Rare Disease Day at NIH \u2013 Somatic Cell Gene Editing<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Rare Disease Day at NIH \u2013 Somatic Cell Gene Editing\"><img decoding=\"async\" src=\"https:\/\/scge.mcw.edu\/wp-content\/uploads\/2023\/12\/Rare-Disease-Day-2024.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/scge.mcw.edu\" rel=\"nofollow\">scge.mcw.edu<\/a>\n\n\n<h2>NCATS on X: &#8220;Are you interested in learning more about <\/h2>\n\n\n\n\n<p align=\"center\"> <a><img decoding=\"async\" src=\"https:\/\/pbs.twimg.com\/media\/GDgTaNwXoAA6Jlk.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/twitter.com\" rel=\"nofollow\">twitter.com<\/a>\n\n\n<h2>Rare Disease Day at NIH scheduled for February 29<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Rare Disease Day at NIH scheduled for February 29\"><img decoding=\"async\" src=\"https:\/\/tracs.unc.edu\/images\/news\/RDDNIH_2024_Event-Icon_260x260px.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/tracs.unc.edu\" rel=\"nofollow\">tracs.unc.edu<\/a>\n\n\n<p><b>Nih Rare Disease Day 2024 Rare Disease Day at NIH 2024   National Organization for Rare <\/b>:   NIH Reports New Direct Links Discovered Between the Brain and its Surrounding Environment &#8211; Implications for Neural-Immune System Responses and Aging  . &#8220;The more we involve people who are living with the challenges, the faster progress we will make toward a treatment or an invention or an innovation that will address those needs.&#8221;  . <\/p>\n\n\n]]>\t\t<\/p>\n\n<div style=\"font-size: 0px; height: 0px; line-height: 0px; margin: 0; padding: 0; clear: both;\"><\/div>","protected":false},"excerpt":{"rendered":"<p>\t\t\t\t<![CDATA[]]>\t\t<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[57],"tags":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts\/5794"}],"collection":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/comments?post=5794"}],"version-history":[{"count":0,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts\/5794\/revisions"}],"wp:attachment":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/media?parent=5794"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/categories?post=5794"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/tags?post=5794"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}